Wednesday, July 24, 2013

GIB UPDATE 7.24

 
Since we saw the neurologist in May, Gabriel has progressed so, so much. We still take it one day a time, but we are working with him each day to try and bring him up to the next level.
He still has good days and he has bad days. He recently started the constant screaming again. I took him to the doctor last Friday to see if something was wrong, but he was healthy as a horse. Our pediatrician and I talked about the situation for a bit and we thought it was perhaps separation anxiety mixed with an overwhelming frustration to want to do things. He has the strength and he knows he should be doing them, but his brain and body aren't connecting on all cylinders yet to let him achieve this--plus he can't tell us what he wants or what is wrong.
So, as of recent events, we don't leave the house very much.
Gibby is still attending therapies twice a week for about an hour-hour and a half.
Here is everything he can do now as a result of these therapies and working at home.
1. He can sit up completely unassisted. We are working on a straighter sit because he tends to curl his spine and sit back on his tailbone, so we are constantly working with him to sit a little straighter and tighten that core.
2. He can turn himself 360 degrees in a sitting position while pushing himself with his hands/arms.
3. He has more flexibility in turning while sitting or reaching side to side while sitting.
4. Using his arms and hands he can scoot himself backwards on his bottom to get somewhere.
5. He has much more flexibility.
6. He can go from sitting to a shoulder roll that will take him on to his back. He used to fling himself backwards.
7. He can bring himself up from a laying position to a sitting position on his own.
8. He plays with toys.
9. He plays with toys using both hands.
10. He plays with toys while on his tummy.
11. He rolls everywhere and with amazing speed.
12. He has started to slowly attempt army crawling.
13. He will bring his knees up to a crawling position while on his tummy and scoot himself forward. We are still working on the shoulder, arm, hand, and core strength.
14. He can clap his hands.
15. He can raise his arms above his head as high as they will go when we ask, "How big is Gibby?"
16. He can say "more" and "all done" in sign language with prompting.
17. He can drink from a sippy cup on his own.
18. He has eaten eggs, bread, raspberries, pears, bananas and ice cream. He feeds himself.
19. He can stack toys, take them out of stuff, and put them away.
20. He is using both hands equally and with greater strength that previous months.
He still has a long road ahead of him, but I am so impressed with how far he has come. His genetic test is next Tuesday and he starts speech therapy in August.
We are still going to physical therapy and occupational therapy each week, and we are still working with Family Outreach (paperwork stage).
He still struggles in overwhelming situations, but has also responded very well to being removed from the situation to a quiet environment.
He also got to play in a pool for the first time this week and LOVED it:
And here is an example of Gibby playing on his tummy
Here is an example of the screaming he does. The first two screams are what he does almost constantly at the moment. Taking him outside is about the only thing that will stop the screaming right now. He will scream like that as loud as he can for as long as he can, and then he takes a breath and does it all over again. As his mom, I have gotten pretty good at tuning it out. Caderyn struggles with it, so we have started encouraging him to go play in his room or to go outside until Gibby is able to calm down for a little bit.
 

2 comments:

B said...

Thanks for the update, happy for the progression, still praying on the "paperwork"

Cloudy Day Gray said...

He is SO CUTE! I love his smile and that hair! I am SO proud of the accomplishments he is making. Nice work to all.